Check out the recent article from the Washington Post addressing gender bias in medicine. What do you think? Do you see this in your work?

From heart disease to IUDs: How doctors dismiss women’s pain

We are excited about the introduction of HR 8840/S4873 Improve Access to Advance Care Planning Act. We applaud Rep. Blumenauer, Sen. Collins, Sen. Warner, Sen. Collins and Sen. Klobuchar for proposing this bill.

This bill improves access to advance care planning (ACP) in multiple ways, and improved access is better for value-based health care. ACP conversations are important voluntary conversations that engage patients in sharing their values, goals, and preferences regarding future medical care. Advance care planning is associated with documentation of values and preferences, patient and surrogate satisfaction with communication, and positive surrogate outcomes such as caregiver burden and distress (1). Allowing for billing of ACP incentivizes the health care system to engage in this beneficial practice, and thus far these codes are considered somewhat underutilized.

We, the board members of the Social Work Hospice and Palliative Care Network (SWHPN) recently made a statement in response to the demographic data released by the Association of the Social Work Boards (ASWB). We noted our concern about the inevitable inherent racial bias embedded in the exam. Representing an organization of social workers working to bring humanity to serious illness and end-of-life care, we continue to reflect on ways to challenge the systems that deny and defy the basic humanity in all of us. It is in this endeavor that we respond to the recent New York Times opinion piece written by John McWhorter. 

In his opinion piece, Mr. McWhorter takes issue with the protest against the ASWB exam as racist. He points to the petition on Change.org and derides it for not sufficiently explaining why the tests are racist. Whether or not you believe the assertion that the test is racist depends on whether or not you believe the educational system in the United States, from preschool to graduate school, is embedded in a racist system and is infused with racist practices. There has been sufficient research data that support the fact that there are “categorical inequalities between Black and white students” in disciplinary policies, access to advanced courses, assignment to gifted and talented and special needs programs, and in practices of racialized tracking. The truth is that 68 years since the US Supreme Court ruling in Brown v Board of Education, high levels of racial and economic segregation persist in most metropolitan areas and with it, disparities in education. 

SWHPN Statement on SCOTUS Dobbs v. Jackson Ruling

The Social Work Hospice and Palliative Care Network (SWHPN) is outraged and profoundly disappointed at the decision released on Friday, June 24 by the Supreme Court of the United States in the Dobbs vs Jackson ruling. This decision not only becomes the first Supreme Court decision to take away recognized individual liberty by ignoring stare decisis, it also places many people’s, and in particular, women’s autonomy lives, and well-being in jeopardy.  It conflicts with the Social Work Code of Ethics by interfering with social workers’ commitment to the dignity and worth of every person, and people’s rights to self-determination, especially over their bodies. Bodily integrity and autonomy are cornerstones for liberty within our society. We anticipate that those who have been historically marginalized and excluded within our society will suffer greatly, and disproportionately, from this decision. We will remain vigilant and encourage our members to work for unfettered access to high-quality health care for every person in our country. Social workers will stand firm in our commitment to social justice, access to quality healthcare, including reproductive health, and the right of every person to self-determination and liberty. 

Many of us have been anxiously watching the news from Ukraine and wondering what we can do to help. SWHPN is part of the World Hospice and Palliative Social Workers (WHPCSW.net) community. We are coming together now to support our HAPC colleagues in Ukraine, who are facing a humanitarian emergency through a critical lack of necessary medical supplies for patients in hospices, palliative care settings, and hospitals. These vulnerable patients and their families, as well as healthcare staff, are unable to leave the country while Russia is attacking.
 
SWHPN is collecting donations of funds and ensuring they get distributed to bona fide organizations and NGOs on the ground in Ukraine, Poland and Romania. The WHPCSW is actively helping connect people throughout our network. The head of the Ukrainian Association of Palliative and Hospice Care is asking for donations of needed medical supplies. Our contact in Ireland is planning to buy the supplies and get them to another contact at the Poland/Ukrainian border, and from there, we are working to secure transport to hospices throughout the country. You can help by donating here.

In March of 2021, the Improving Access to Mental Health Act of 2021 was introduced in the House. This bipartisan bill, co-sponsored by Senator Debbie Stabenow (D-MI), Senator John Barrasso (R-WY), and Representative Barbara Lee, MSW (D-CA), will address gaps in services that Clinical Social Workers are able to provide under current law. 

There are 42 cosponsors in the House and 5 in the Senate. Per the NASW advocacy alert, we need at least 175 cosponsors in the House and over 50 in the Senate to demonstrate broad support for this bill and elevate it to potential consideration. It is anticipated that this might be a topic of focus in the coming months due to a recent request from the Senate Finance Committeeabout concerns that every American should be able to access high-quality behavioral health care when needed. 

Finding time to keep updated on pending palliative care legislation can be a challenge for busy palliative care practitioners. However, political advocacy work is as important as direct care work, and in some instances, may have the potential to improve lives and decrease suffering on a much larger scale. There is an urgent need to improve equitable access for all people who could benefit from palliative care, especially those who have been unfairly impacted by systemic racism and other forms of oppression in health care. This type of change will require some changes in public policy and laws. The palliative care community can work together to influence these changes through increasing engagement in political palliative care practice. 

Political palliative care is not partisan. Policy advocates view frontline healthcare professionals as important potential contributors for political action and advocacy due to their unique knowledge, proximity, and insight into the lives of the patients they care for. For patients with complex long-term healthcare needs, such as those served in palliative care, this type of practitioner advocacy can help communicate the perspective of a population of patients who may not be as well-equipped to communicate their experiences barriers to care and unmet needs.

The Congressional Social Determinants of Health (SDOH) Caucus is a bipartisan effort of lawmakers started in July of 2021 to improve approaches for addressing health disparities experienced by persons disproportionately impacted by SDOH and improve well-being. In this effort, the Caucus is seeking comments and feedback from the public on challenges and opportunities related to SDOH by September 21, 2021.