Resources from SWHPN

SWHPN is developing an ongoing list of resources for this page, tips for social workers on the front lines, and facilitators for virtual Social Work Open Discussions. Please reach out to [email protected] to contribute or participate.

• "We are holding space for you." | A message from SWHPN Board Chair, Allie Shukraft, MSW, MAT, APHSW-C

• SWHPN News Briefs | Free to subscribe, distributed weekly on Wednesdays

• SWHPN Virtual Summits | discounted for SWHPN Members

• Open Q&A on Lessons Learned from Previous Pandemics and Crises: How Can They Help us Manage the Pandemic Response Today? | Thursday, May 28 | 4:00 pm PST / 7:00 pm EST

Communication Tools

• Specific phrases & word choices that can be helpful when dealing with COVID19 (updated 4/1/20) | Serious Illness Conversations

• My Living Voice Advance Care Planning Tool | Vital Decisions

• Supporting Children Experiencing Visiting Restrictions or the Loss of a Parent | Lucile Packard Children's Hospital at Stanford

• Tip Sheet 01: Working With Families Facing Undesired Outcomes During the COVID-19 Crisis | Jennifer Halpern, PhD, LMSW, APHSW-C

• COVID-ready communication skills: A playbook of VitalTalk Tips | Google Doc/downloadable version

• SPIKES: A Six-Step Protocol for Delivering Bad News | The Oncologist

• Having Planning Conversations | Respecting Choices

• Managing Communication with Patients and Families | Italian Society for Palliative Care

Free Trainings & Webinars (last updated May 27, 2020)

• Thursday, May 28th: Staying Resilient as the COVID-19 Pandemic Continues | CAPC
• Open Discussion with April Naturale, PhD | April 30, 2020 | Recording-on demand here | April's slides here

• Office Hours: Q&A Part I with Dr. Brian Mistler on Palliative Care & Telehealth | recorded, on-demand | SWHPN

• Office Hours: Q&A Part II with Dr. Brian Mistler on Telehealth, Assessments & Management | recorded, on-demand | SWHPN

• Virtual COVID-19 Town Hall with Coalition Leaders | recorded, on-demand | National Coalition for Hospice and Palliative Care

• Palliative Care and the Impact of COVID-19 | recorded, on-demand | CAPC 

• Briefing: Serious Illness, Palliative Care, and the Impact of COVID-19 | recorded, on-demand | CAPC

• Hospice and End-of-Life Care in Nursing Homes During COVID-19 | recorded, on-demand | Hospice Foundation of America

COVID-19 Resources from Hospice & Palliative Care Organizations

• National Association of Social Workers (NASW)

• National Coalition for Hospice and Palliative Care

• Center to Advance Palliative Care (CAPC)

• National Hospice and Palliative Care Organization (NHPCO)

• American Academy of Hospice and Palliative Medicine (AAHPM)

• Worldwide Hospice Palliative Care Alliance (WHPCA)

• European Association for Palliative Care (EAPC)

• Pediatric Palliative Care Coalition (PPCC)

Other Resources for Palliative Care and Hospice Professionals

• Ethical Framework for Decision Making in HPC | NHPCO

• COVID-19 Resources for Healthcare Professionals | Centers for Medicare & Medicaid Services (CMS)  

• COVID-19 Shared Decision-Making Tool | NHPCO

Guidelines From Countries & Organizations Outside the U.S.

• 'A good death' during the Covid-19 pandemic in the UK: a report on key findings and recommendations (includes findings from various faith communities) | LSE Anthropology

• Palliative care network framework in response to COVID-19 emergency | A resource from one locality in Italy but may help organizations think through issues related to palliative care operations

• The Australian and New Zealand Intensive Care Society (ANZICS) COVID-19 Guidelines

• Good Practices for Social Work COVID-19 | National Palliative Care Commission of Portugal

• Guidance for Medical Social Workers | Irish Association of Social Workers

Resources for Hospice Social Workers

• Coronavirus Resources for Home Care & Hospice | National Association for Home Care & Hospice 

• COVID-19 Homecare and Hospice Checklist | Pennsylvania Homecare Association

• Sample Letter for Clients/Families | Pennsylvania Homecare Association

Resources for Nursing Homes, SNFs, LTC Facilities

• Virtual Visits Toolkit - helping residents in nursing homes connect with their loved ones | Family Councils Ontario

• COVID-19 Long-Term Care Facility Guidance (4/3/20) | CMS

• Coronavirus Disease 2019 (COVID-19) in Nursing Homes with Hospice Patients | NHPCO

• A Pragmatist’s Advice for Nursing Homes | MediCaring.org

• Missouri DHHS Guidance on Hospice Care in Long Term Care Facilities | Missouri Department of Health & Human Services

• Telehealth Guidelines

Telehealth Guidance from CMS

• Video Available on Medicare Coverage and Payment of Virtual Services | CMS 

• CMS Fact Sheet on Telehealth and Virtual Check-Ins by Clinicians (3/30/20) | CMS

• CMS Fact Sheet on Hospices (3/30/20) | CMS

Telehealth Resources

• Telehealth in Pandemic | Michigan State University

• Tips and Practices for Providing Telemental Health Services | Wayne State University

• Telehealth Online Course | Penn Nursing

• Telehealth Startup Guide | CAPC

• The Therapist's Telehealth Guide to COVID-19 | TherapyNotes

• Telemedicine: Virtual Connection in an Age of Social Distancing | CAPC

• Sample Telehealth Consent Form | NASW 

• Telehealth Visit Outline | Reach PC

Policy & Advocacy

• National Hospice Stakeholder Groups Joint Request Letter for COVID-19 Response Package | NHPCO 

State & Federal Guidances on Workplace Safety

• Guidance for Infection Control and Prevention of Coronavirus Disease 2019 (COVID-19) in Nursing Homes (Revised for Visitation 3/13/2020) | CMS

• Guidance for Infection Control and Prevention Concerning COVID-19 by Hospice Agencies | CMS

• Interim U.S. Guidance for Risk Assessment and Public Health Management of Healthcare Personnel with Potential Exposure in a Healthcare Setting to Patients with COVID-19 | Centers for Disease Control (CDC)

• Guidance for Preparing Workplaces for COVID-19 | OSHA

• Crisis Standards of Care | U.S. Department of Health & Human Services

Grief and Bereavement

• Grief: The New Normal | free e-book | Chaplaincy Innovation Lab

• COVID-19 and Complicated Grief | Association for Death Education and Counseling

• Tool Kit | The Order of the Good Death

• Responding to Change and Loss | National Alliance for Grieving Children 

• Supporting Children Experiencing the Loss of a Parent | Lucile Packard Children's Hospital at Stanford

• Guidance for Bereavement Support |  Specialist Palliative Care Social Workers in Ireland (Oct. 2019)

• Grief Counseling Resource Guide: A Field Manual | New York State Office of Mental Health 

• Grieving In Exceptional Times | Irish Hospice Foundation

• Complicated Grief Resources | The Center for Complicated Grief at Columbia University

• Planning a Funeral In Exceptional Times | Irish Hospice Foundation

Social Isolation

• How to stay connected while intentionally isolated | Coalition to End Social Isolation & Loneliness 

• Staying Engaged During Coronavirus Isolation: Home Therapeutic Activities for Individuals Living with Alzheimer’s Disease | Alzheimer's Foundation of America

Resources for Pediatric Palliative Social Work

• COVID-19 Time Capsule | Natalie Long at LongCreations

• Living My Best Quarantined Life | National Alliance for Grieving Children

• Keeping in Touch | National Bereavement Alliance APCSW Childhood Bereavement Network

• COVID-19 Resources from Pediatric Palliative Care Coalition | PPCC

• Print Resources for Families on COVID-19 | CDC

• Talking to and Supporting Children During a Pandemic | American Academy of Pediatrics

• Coronavirus (COVID-19): How to Talk to Your Child | KidsHealth

• Messages for parents, school staff, and others working with children | CDC

• Resources for the OCD and Related Disorders Community | International OCD Foundation

• Kids Worksheet on Coronavirus | Mind Heart Kids

Resources for Oncology Social Work

• How to Manage Cancer Care during COVID-19 Pandemic | National Comprehensive Cancer Network

• Disruptions in Cancer Care in the Era of COVID-19 | Medscape | Free Subscription

Self-Care & Support for Social Workers

• COVID-19 Self-Care Resources (for Clinicians, Caregivers, etc.) | Institute for Human Caring

• The Emotional PPE Project | Atrium Health

• Caring for Yourself & Caring for Others During a Disaster/Epidemic (recording) | Susan Hedlund, M.S.W., L.C.S.W., O.S.W.-C.

• The Isolation Journal | Suleika Jaouad

• Self-Care Starter Kit | University of Buffalo School of Social Work 

• 30-Day Coping Calendar | Action for Happiness

• Ten Percent Happier App | Free for Healthcare Workers (use gift code HEALTHCARE)

• Down Dog Yoga | Free until April 1st

• Headspace for Healthcare Workers | Free guided meditations

• Tips for Working From Home | March for Science

Support for Social Work Students

• Crowdsourced Social Work Education Resources related to managing disruptions | Google Sheet  

Support for Social Work Educators

• Building a Community of Learning | free PDFs, videos on online education best practices | SNHU

• Council on Social Work Education Response to Coronavirus | CSWE

• Technology-Based Learning Task List for Social Work Education (Version 1.1) | Laurel Iverson Hitchcock, Melanie Sage and Nancy J. Smyth 

• Remote Workshop Activities | SessionLab

Staying Connected

• Social Work Open Discussion | Tuesdays and Thursdays at 7:00 pm Eastern

• Facebook Groups

• Social Work Hospice & Palliative Care Network

• COVID-19 Palliative Care Providers

• Twitter: click the hashtag to see tweets, information, inspiration, and resources.

• #PalliCovid

• #SWCOVID19

• #SWHPN

• #PedPCCovid

News, Blog Posts & Articles

• Hospice Workers Adjust During COVID-19 Pandemic | Spectrum News

• Ethical Exceptions for Social Workers in Light of the COVID-19 Pandemic and Physical Distancing | New Social Worker

• Palliative Care in the Time of COVID | The Ink Vessel 

• Palliating a Pandemic: “All Patients Must Be Cared For” |  Journal of Pain and Symptom Management

• Navigating COVID-19 as a Hospice and Palliative Care Professional | AAHPM

• Social Work, COVID-19, and Being Human | Social Work, Cats and Rocket Science

• Palliative Care and COVID-19 | End-of-Life Studies Program at University of Glasgow

• Trauma of Pandemic Proportions | Psychology Today

• The Voice and Role of Palliative Care in COVID-19 | Suzana Makowski via Pallimed

• How to Support People Working in Healthcare During Coronavirus | Huffington Post

When all else fails, do this.